FINDING OUR WAY: LIVING WITH DYING IN AMERICA — The Online Course
A new web resource, “Finding Our Way: Living with Dying in America — The Online Course” is available at this link. The resource serves as a short course on death and dying and covers a variety of topics related to the subject. The practical advice, resources, and personal stories in ‘Finding Our Way’ can teach how to approach these most significant life events with the same kind of planning and emotional preparedness people strive for in the rest of their lives.
This free, web-based course is part of the Finding Our Way national public education initiative focused on bringing practical information on end-of-life issues to the American public. The course is completely self-paced and all course materials are included on the web. This online course grew out of a 15-part national newspaper series distributed by Knight Ridder/Tribune that appeared in more than 160 newspapers and reached millions last year.
In response to our previous conference entitled “Taking Charge: Planning for End of Life Care,” here is a list of websites regarding Values History forms:
University of New Mexico http://www.hospicefed.org/?page=valueshistory
Hospice Federation of Massachusetts http://www.hospicefed.org/hospice_pages/valuesform.htm
Here are nine questions to help your family know how you feel about your goals for your medical treatment. Use this as a starting point for advance care planning.
- How do you feel about your current health?
- How important are independence and self-sufficiency in your life?
- How do you imagine handling illness, disability, dying and death?
- How might your personal relationships affect medical decision- making, especially near the end of life?
- What role should doctors and other health professionals play in such decisions?
- What kind of living environment would be acceptable to you if you became seriously ill or disabled? Would you want to live in a nursing home or assisted living facility? Receive in-home care?
- How much should the cost to your family be a part of the decision-making process?
- What role do religious or spiritual beliefs play in decisions about your health care? What are your thoughts about living life’s final stages? What are your hopes and fears?
- What are your thoughts about living life’s final stages? What are your hopes and fears?
Information provided by The San Diego County Coalition for Improving End-of-Life Care*
A Campaign for Forgiveness Research
American Academy of Hospice and Palliative Medicine
American Association of College of Nurses
American Geriatrics Society
Approaching Death: Improving Care @ the End of Life
Before I Die
CAHSAH – California Association for Health Care Services at Home
California Coalition for Compassionate Care (CCCC)
California Hospice and Palliative Care Association
Dale Larsen’s Web Site
Death in America Project
Education for Physicians on End-of-Life Care (EPEC)
End-of-Life Nursing Education Consortium (ELNEC)
Family Caregivers Alliance
FRIA: Friends & Relatives of Institutionalized Aged
Growth House, Inc. Search Engine
Hard Choices for Loving People
Hospice Hands Webring
Hospice Foundation of America
Innovations in End-of-Life Care
How to Select a HealthCare Agent
Ira Byock’s Web Site
International Association for Hospice and Palliative Care
Last Acts website and bookstore for End of Life
National Alliance for Caregiving
National Hospice & Palliative Care Organization
National Palliative Care Research Center
On Our Own Terms: Moyers on Dying
Partnership for Caring: America’s Voices for the Dying
Spiritual Care Program Website
Southern Caregiver Resource Center
The Forgiveness Web
Yahoo’s Hospice Links
Bereaved Children and Teens: A Support Guide for Parents. Dr. Earl A Grollman. Beacon Press.
Concerning Death: A Practical Guide for the Living. Dr. Earl A Grollman. Beacon Press.
Coping with Death and Dying. Elisabeth Kubler Ross. Macmillan Company.
Explaining Death to Children. Dr. Earl A. Grollman. Beacon Press.
The Funeral: Vestige or Value? Paul E. Irion. Abingden Press.
Good Grief. Granger E. Westberg. Fortress Press.
|Grief and the Meaning of the Funeral. Otto Margolis, et al. MSS Information Corporation.
Healing the Pain of Everyday Loss. Ira J. Tanner. Winston Press.
Helping Children Cope with Grief. Dr. Alan Wolfelt. Accelerated Development.
Living When a Loved One has Died. Dr. Earl A Grollman. Beacon Press.
On Death and Dying. Elisabeth Kubler Ross. Macmillan Company.
Psychology of Death. Robert Kastenbaum. Macmillan Company.
Talking About Death: A Dialogue Between Parent & Child. Dr. Earl A Grollman. Beacon Press.
What Helped Me When My Loved One Died. Edited by Dr. Earl A Grollman. Beacon Press.
When Bad Things Happen to Good People. Harold Kushner. Avon Books.
Understanding Grief: Helping Yourself Heal. Dr. Alan Wolfelt. Accelerated Development.