Resources

Alzheimers Foundation of America Caregiving Resources A rich selection of resources for caregivers providing for people with Alzheimers.

Coalition for Compassionate Care Video Library An extensive collection of informative and instructional videos on a variety of topics concerning end-of-life decision making.

California Caregiver Resource Centers The California Caregiver Resource Centers are a network of 11 centers throughout California which serve over 18,000 family caregivers annually.

Free Will A simple-to-execute online form will. Simply follow the instructions to complete your will. Includes support for more complicated situations for which an online will may not be appropriate.

LGBTQ+ Advance Care Planning Toolkit A step-by-step guide for the LGBTQ+ community in preparing for healthcare needs and end-of-life decisions.

Values History Form University of New Mexico provides a Values History form to help you work through issues in end-of-life decision making.

The Chaplaincy Taxonomy: Standardizing Spiritual Care Terminology

Palliative Care Education: CSU Institute for Palliative Care Course Catalog

Is Palliative Care Right For You? click to access questionnaire

FINDING OUR WAY:  LIVING WITH DYING IN AMERICA — The Online Course

A new web resource, “Finding Our Way:  Living with Dying in America — The Online Course” is available at this link. The resource serves as a short course on death and dying and covers a variety of topics related to the subject. The practical advice, resources, and personal stories in ‘Finding Our Way’ can teach how to approach these most significant life events with the same kind of planning and emotional preparedness people strive for in the rest of their lives.

This free, web-based course is part of the Finding Our Way national public education initiative focused on bringing practical information on end-of-life issues to the American public.  The course is completely self-paced and all course materials are included on the web.  This online course grew out of a 15-part national newspaper series distributed by Knight Ridder/Tribune that appeared in more than 160 newspapers and reached millions last year.


VALUES CLARIFICATION:

Here are nine questions to help your family know how you feel about your goals for your medical treatment. Use this as a starting point for advance care planning.

  1. How do you feel about your current health?
  2. How important are independence and self-sufficiency in your life?
  3. How do you imagine handling illness, disability, dying and death?
  4. How might your personal relationships affect medical decision- making, especially near the end of life?
  5. What role should doctors and other health professionals play in such decisions?
  6. What kind of living environment would be acceptable to you if you became seriously ill or disabled? Would you want to live in a nursing home or assisted living facility? Receive in-home care?
  7. How much should the cost to your family be a part of the decision-making process?
  8. What role do religious or spiritual beliefs play in decisions about your health care?  What are your thoughts about living life’s final stages? What are your hopes and fears?
  9. What are your thoughts about living life’s final stages? What are your hopes and fears?

GENERAL INTERNET RESOURCES ON PALLIATIVE AND HOSPICE CARE:

Information provided by The San Diego County Coalition for Improving End-of-Life Care*

American Academy of Hospice and Palliative Medicine

American Geriatrics Society

CAHSAH – California Association for Health Care Services at Home

California Coalition for Compassionate Care (CCCC)

California Hospice and Palliative Care Association

Death in America Project

Education for Physicians on End-of-Life Care (EPEC)

End-of-Life Nursing Education Consortium (ELNEC)

Family Caregivers Alliance

Hard Choices for Loving People

Hospice Foundation of America

How to Select a Health Care Agent

International Association for Hospice and Palliative Care

Mesothelioma.net

National Alliance for Caregiving

National Hospice & Palliative Care Organization

National Palliative Care Research Center

Partnership for Caring: America’s Voices for the Dying

Southern Caregiver Resource Center


FORMS:

California 2017 new POLST

California Advance Health Care Directive form

ARTICLES:

Do Not Resuscitate: What Young Doctors Would Choose. The New York Times, Span, P. (May 20, 2014).

An Online Generation Redefines Mourning, The New York Times, Seligson, H., (March 21, 2014).


BOOKS:

Bereaved Children and Teens: A Support Guide for Parents. Dr. Earl A Grollman. Beacon Press.

Concerning Death: A Practical Guide for the Living. Dr. Earl A Grollman. Beacon Press.

Coping with Death and Dying. Elisabeth Kubler Ross. Macmillan Company.

Explaining Death to Children. Dr. Earl A. Grollman. Beacon Press.

The Funeral: Vestige or Value? Paul E. Irion. Abingden Press.

Good Grief. Granger E. Westberg. Fortress Press.

Grief and the Meaning of the Funeral. Otto Margolis, et al. MSS Information Corporation.

Healing the Pain of Everyday Loss. Ira J. Tanner. Winston Press.

Helping Children Cope with Grief. Dr. Alan Wolfelt. Accelerated Development.

Living When a Loved One has Died. Dr. Earl A Grollman. Beacon Press.

On Death and Dying. Elisabeth Kubler Ross. Macmillan Company.

Psychology of Death. Robert Kastenbaum. Macmillan Company.

Talking About Death: A Dialogue Between Parent & Child. Dr. Earl A Grollman. Beacon Press.

What Helped Me When My Loved One Died. Edited by Dr. Earl A Grollman. Beacon Press.

When Bad Things Happen to Good People. Harold Kushner. Avon Books.

Understanding Grief: Helping Yourself Heal. Dr. Alan Wolfelt. Accelerated Development.