Resources

FINDING OUR WAY:  LIVING WITH DYING IN AMERICA — The Online Course

A new web resource, “Finding Our Way:  Living with Dying in America — The Online Course” is available at this link. The resource serves as a short course on death and dying and covers a variety of topics related to the subject. The practical advice, resources, and personal stories in ‘Finding Our Way’ can teach how to approach these most significant life events with the same kind of planning and emotional preparedness people strive for in the rest of their lives.

This free, web-based course is part of the Finding Our Way national public education initiative focused on bringing practical information on end-of-life issues to the American public.  The course is completely self-paced and all course materials are included on the web.  This online course grew out of a 15-part national newspaper series distributed by Knight Ridder/Tribune that appeared in more than 160 newspapers and reached millions last year.


INTERNET RESOURCES ON VALUES HISTORY FORMS:

In response to our previous conference entitled “Taking Charge:  Planning for End of Life Care,” here is a list of websites regarding Values History forms:

University of New Mexico   http://www.hospicefed.org/?page=valueshistory

Hospice Federation of Massachusetts  http://www.hospicefed.org/hospice_pages/valuesform.htm


VALUES CLARIFICATION:

Here are nine questions to help your family know how you feel about your goals for your medical treatment. Use this as a starting point for advance care planning.

  1. How do you feel about your current health?
  2. How important are independence and self-sufficiency in your life?
  3. How do you imagine handling illness, disability, dying and death?
  4. How might your personal relationships affect medical decision- making, especially near the end of life?
  5. What role should doctors and other health professionals play in such decisions?
  6. What kind of living environment would be acceptable to you if you became seriously ill or disabled? Would you want to live in a nursing home or assisted living facility? Receive in-home care?
  7. How much should the cost to your family be a part of the decision-making process?
  8. What role do religious or spiritual beliefs play in decisions about your health care?  What are your thoughts about living life’s final stages? What are your hopes and fears?
  9. What are your thoughts about living life’s final stages? What are your hopes and fears?

GENERAL INTERNET RESOURCES ON PALLIATIVE AND HOSPICE CARE:

Information provided by The San Diego County Coalition for Improving End-of-Life Care*

About.com
http://dying.about.com/health/dying/

A Campaign for Forgiveness Research
http://www.forgiving.org/

American Academy of Hospice and Palliative Medicine
http://www.aahpm.org/

American Association of College of Nurses
http://www.aacn.nche.edu/

American Geriatrics Society
http://www.americangeriatrics.org/

Approaching Death: Improving Care @ the End of Life
http://nap.edu/readingroom/books/approaching/

Before I Die
http://www.wnet.org/bid/index.html

Beliefnet
http://www.beliefnet.com/

CAHSAH – California Association for Health Care Services at Home
http://www.cahsah.org/?p=homecare/

California Coalition for Compassionate Care (CCCC)
http://coalitionccc.org/

California Hospice and Palliative Care Association
http://calhospice.org/

Dale Larsen’s Web Site
http://www.scu.edu/Hospice/

Death in America Project
http://www.deathinamerica.com/

Education for Physicians on End-of-Life Care (EPEC)
http://www.epec.net/

End-of-Life Nursing Education Consortium (ELNEC)
http://www.aacn.nche.edu/elnec

Ethics Center
http://www.ethicscenter.net

Family Caregivers Alliance
http://www.caregiver.org/caregiver/jsp/home.jsp

FRIA: Friends & Relatives of Institutionalized Aged
http://www.fria.org/fria/

Funeral Resources
http://www.funerals.org/

Growth House, Inc. Search Engine
http://www.growthhouse.org/

Hard Choices for Loving People
http://www.hardchoices.com/

Hospice Cares
http://www.hospice-cares.com/

Hospice Hands Webring
http://www.growthhouse.org/rings.html

Hospice Foundation of America
http://www.hospicefoundation.org/

Hospice Net
http://www.hospicenet.org/

Innovations in End-of-Life Care
http://www2.edc.org/lastacts/

How to Select a HealthCare Agent
https://theconversationproject.org

Ira Byock’s Web Site
http://www.dyingwell.org/

International Association for Hospice and Palliative Care
http://www.hospicecare.com/

Last Acts website and bookstore for End of Life
http://www.rwjf.org/pr/product.jsp?id=20938

Mesothelioma Guide
http://www.MesotheliomaGuide.com

National Alliance for Caregiving
http://www.caregiving.org/

National Hospice & Palliative Care Organization
http://www.nhpco.org/templates/1/homepage.cfm

National Palliative Care Research Center
http://www.npcrc.org/

On Our Own Terms: Moyers on Dying
http://www.thirteen.org/onourownterms/

Partnership for Caring: America’s Voices for the Dying
http://www.caringinfo.org/

Peaceful Transitions
http://www.64peace.com/

Spiritual Care Program Website
http://www.spcare.org/

Southern Caregiver Resource Center
http://caregivercenter.org

The Forgiveness Web
http://www.forgivenessweb.com/

Yahoo’s Hospice Links
http://dir.yahoo.com/Health/long_term_care/hospice/


FORMS:

California 2016 new POLST
Key Facts about Physician Orders for Life-Sustaining Treatment (POLST) for Residents and Family Members

California Advance Health Care Directive form

ARTICLES:

Do Not Resuscitate: What Young Doctors Would Choose. The New York Times, Span, P. (May 20, 2014).

An Online Generation Redefines Mourning, The New York Times, Seligson, H., (March 21, 2014).


BOOKS:

Bereaved Children and Teens: A Support Guide for Parents. Dr. Earl A Grollman. Beacon Press.

Concerning Death: A Practical Guide for the Living. Dr. Earl A Grollman. Beacon Press.

Coping with Death and Dying. Elisabeth Kubler Ross. Macmillan Company.

Explaining Death to Children. Dr. Earl A. Grollman. Beacon Press.

The Funeral: Vestige or Value? Paul E. Irion. Abingden Press.

Good Grief. Granger E. Westberg. Fortress Press.

Grief and the Meaning of the Funeral. Otto Margolis, et al. MSS Information Corporation.

Healing the Pain of Everyday Loss. Ira J. Tanner. Winston Press.

Helping Children Cope with Grief. Dr. Alan Wolfelt. Accelerated Development.

Living When a Loved One has Died. Dr. Earl A Grollman. Beacon Press.

On Death and Dying. Elisabeth Kubler Ross. Macmillan Company.

Psychology of Death. Robert Kastenbaum. Macmillan Company.

Talking About Death: A Dialogue Between Parent & Child. Dr. Earl A Grollman. Beacon Press.

What Helped Me When My Loved One Died. Edited by Dr. Earl A Grollman. Beacon Press.

When Bad Things Happen to Good People. Harold Kushner. Avon Books.

Understanding Grief: Helping Yourself Heal. Dr. Alan Wolfelt. Accelerated Development.